Here we go! It's the month when we shout a little louder for a cure! The tagline in the CFF posts for today say, "It's easy to get involved. Tell your CF story on social media using the hashtag #CFAwarenessMonth."
And I'm here to tell you that THIS IS NOT TRUE. It's NOT EASY. It wasn't easy the first year (See photo flashback - wow, I get emotional just looking at this photo. We had no idea!) and it might be even harder now ten years in. But we speak up about our CF journey because it is IMPORTANT: because our stories matter, because we strive to educate, advocate, and fundraise, because we have come so far but we aren't to the finish line YET.
So, please follow along with me this month as I share a little more about our day to day, this terrifying disease that has linked us to some of the best people I know, and this quest we are on to find a cure for CF! Some of my posts will be simply informative and others deeply personal. I'll do my best to show up every day!
I'm so glad this is happening.